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báo cáo hóa học: " Primary Sjögren's Syndrome: health experiences and predictors of health quality among patients in the United States"

Tuyển tập các báo cáo nghiên cứu về sinh học được đăng trên tạp chí hóa học quốc tế đề tài : Primary Sjögren's Syndrome: health experiences and predictors of health quality among patients in the United States | Health and Quality of Life Outcomes BioMed Central Research Primary Sjogren s Syndrome health experiences and predictors of health quality among patients in the United States Barbara Segal 1 Simon J Bowman2 Philip C Fox3 Frederick B Vivino4 Nandita Murukutla5 Jeff Brodscholl6 Sarika Ogale7 and Lachy McLean8 Open Access Address Associate Professor Division of Rheumatic and Autoimmune Diseases Department of Medicine University of Minnesota USA 2Consultant Rheumatologist University Hospital Birmingham UK 3Visiting Scientist Department of Oral Medicine Carolinas Medical Center Charlotte USA 4Clinical Associate Professor Penn Presbyterian Medical Center USA 5Research Manager Health Care and Policy Research Harris Interactive USA 6Research Methodologist Harris Interactive USA 7Health Economist Genentech USA and 8Genentech USA Email Barbara Segal - segal017@umn.edu Simon J Bowman - Simon.Bowman@uhb.nhs.uk Philip C Fox - pcfox@comcast.net Frederick B Vivino - Frederick.Vivino@uphs.upenn.edu Nandita Murukutla - NMurukutla@harrisinteractive.com Jeff Brodscholl - JBrodscholl@harrisinteractive.com Sarika Ogale - ogale.sarika@gene.com Lachy McLean - mclean.lachy@gene.com Corresponding author Published 27 May 2009 Received 15 October 2008 Health and Quality of Life Outcomes 2009 7 46 doi 10.1186 1477-7525-7-46 Accepted 27 May 2009 This article is available from http www.hqlo.cOm content 7 1 46 2009 Segal et al licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License http creativecommons.org licenses by 2.0 which permits unrestricted use distribution and reproduction in any medium provided the original work is properly cited. Abstract Objective To assess the health related quality of life of patients with primary Sjogren s Syndrome PSS in a large US sample. Methods Questionnaires were mailed to 547 patients with a confirmed diagnosis of PSS PhysR-PSS and all active members of the Sjogren s Syndrome .