tailieunhanh - Ebook Thefacts - Pulmonary arterial hypertension: Part 2

(BQ) Part 2 book "The facts - Pulmonary arterial hypertension" presents the following contents: Your clinic appointments, tests for PAH, clinical trials and evidence-based medicine, supportive treatments for PAH, targeted therapy, when medication is not enough, living your life. | 8 Your clinic appointments 6 Key points Your PAH clinic appointments are important for you and your family. The appointments allow you to ask your specialist team anything you want to know about your condition. Preparing for clinic appointments and travelling to and from clinic can be stressful and tiring. Write down any questions you may have. Bring your medications with you. Do not hesitate to phone after a clinic appointment if there is something you are not sure about or something that has confused you. Specialist PAH clinics and outreach clinics Each of the main PAH centres in the UK runs clinics in its own way and there may be differences in the way that they are run. You may also be seen in an outreach clinic. This is in a hospital which is not one of the specialist PAH centres but is nearer to your home. The outreach clinic is run by a local consultant. One of the specialist consultants from a PAH centre also attends. The aim of outreach clinics is to make life easier for the patient. There is a shorter distance to travel and taking the specialist PAH centre to the patient makes life quite a lot easier. Most patients prefer to see the PAH specialist with their local medical and nursing team at a local hospital. Bring someone with you It is sensible and practical to bring someone with you at least for your first clinic appointment. This is helpful whatever your state of health. Your husband or wife family member or a close friend will take you to the clinic help you carry any bags you may have snack book medications drive you to the clinic and park the car or help you navigate public transport. Hospital transport however may not allow you to travel with someone because there may not be enough room in the car and this is something you should find out from your PAH team when they make your appointment. 46 Chapter 8 Clinic appointments Perhaps most importantly whoever accompanies you will remind you about what you were told in clinic. Most patients find it .