tailieunhanh - báo cáo hóa học:" Health related quality of life in Malaysian children with thalassaemia"

Tuyển tập các báo cáo nghiên cứu về hóa học được đăng trên tạp chí sinh học đề tài : Health related quality of life in Malaysian children with thalassaemia | BioMed Central Health and Quality of Life Outcomes Research Open Access Health related quality of life in Malaysian children with thalassaemia Adriana Ismail 1 Michael J Campbell11 Hishamshah Mohd Ibrahim12 and Georgina L Jones11 Address 1Institute of General Practice and Primary Care Community Sciences Centre University of Sheffield Northern General Hospital Sheffield S5 7AU UK and institute of Paediatrics Hospital Kuala Lumpur Kuala Lumpur 50580 Malaysia Email Adriana Ismail - cmp02ai@ Michael J Campbell - Hishamshah Mohd Ibrahim - drhisham@ Georgina L Jones - Corresponding author lEqual contributors Published 02 July 2006 Received 02 March 2006 Health and Quality of Life Outcomes 2006 4 39 doi 86 1477-7525-4-39 Accepted 02 July 2006 This article is available from http content 4 1 39 2006 Ismail et al licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License http licenses by which permits unrestricted use distribution and reproduction in any medium provided the original work is properly cited. Abstract Background Health Related Quality of Life HRQoL studies on children with chronic illness such as thalassaemia are limited. We conducted the first study to investigate if children with thalassaemia have a lower quality of life in the four dimensions as measured using the PedsQL generic Scale Score physical emotional social and role school functioning compared to the healthy controls allowing for age gender ethnicity and household income. Methods The PedsQL was administered to children receiving blood transfusions and treatments at Hospital Kuala Lumpur Malaysia using PedsQL generic Scale Score. Accordingly the questionnaire was also administered to a control group of healthy school children. Sociodemographic data were also collected from patients and controls using an .

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