tailieunhanh - Health and Quality of Life Outcomes BioMed Central Research Open Access A new instrument to

Health and Quality of Life Outcomes BioMed Central Research Open Access A new instrument to describe indicators of well-being in old-old patients with severe dementia – The Vienna List Franz Porzsolt*1, Marina Kojer2, Martina Schmidl2, Elfriede R Greimel3, Jörg Sigle4, Joerg Richter5 and Martin Eisemann6 Address: 1Clinical Economics Group, University Hospital Ulm, D-89075, Germany, 2Department of Palliative Geriatrics, Geriatric Center Wienerwald, Vienna, Austria, 3Department of Obstetrics and Gynecology, University of Graz, Austria, 4Freudenstein, Germany, 5Clinic of Psychiatry and Psychotherapy, Rostock University, Germany and 6Department of Psychology, University of Tromsø, Norway Email: Franz Porzsolt* - ; Marina Kojer - ; Martina Schmidl - scm@; Elfriede R Greimel. | BioMed Central Health and Quality of Life Outcomes Research Open Access A new instrument to describe indicators of well-being in old-old patients with severe dementia - The Vienna List Franz Porzsolt 1 Marina Kojer2 Martina Schmidl2 Elfriede R Greimel3 Jorg Sigle4 Joerg Richter5 and Martin Eisemann6 Address 1Clinical Economics Group University Hospital Ulm D-89075 Germany 2Department of Palliative Geriatrics Geriatric Center Wienerwald Vienna Austria 3Department of Obstetrics and Gynecology University of Graz Austria 4Freudenstein Germany 5Clinic of Psychiatry and Psychotherapy Rostock University Germany and 6Department of Psychology University of Tromso Norway Email Franz Porzsolt - Marina Kojer - Martina Schmidl - scm@ Elfriede R Greimel - greimele@ Jorg Sigle - Joerg Richter - jrichterj@ Martin Eisemann - martine@ Corresponding author Published 19 February 2004 Received 09 December 2003 Accepted 19 February 2004 Health and Quality of Life Outcomes 2004 2 10 This article is available from http content 2 l l0 2004 Porzsolt et al licensee BioMed Central Ltd. This is an Open Access article verbatim copying and redistribution of this article are permitted in all media for any purpose provided this notice is preserved along with the article s original URL. Abstract Background In patients with very severe dementia self-rating of quality of life usually is not possible and appropriate instruments for proxy-ratings are not available. The aim of this project is to develop an instrument of clinical proxy-ratings for this population. Methods Using electronic instruments physicians and nurses recorded patient behaviour and changes of behaviour over a period of one year. Based on these data a list of 65 items was generated and subsequently allocated to 14 categories. This list was tested in 217 patients 61-105 yrs with dementia diagnosed .