tailieunhanh - báo cáo hóa học: " A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system"

Tuyển tập các báo cáo nghiên cứu về sinh học được đăng trên tạp chí hóa học quốc tế đề tài : A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system | Health and Quality of Life Outcomes BioMed Central Research A predictive model of Health Related Quality of life of parents of chronically ill children the importance of care-dependency of their child and their support system Janneke Hatzmann 1 Heleen Maurice-Stam1 Hugo SA Heymans2 and Martha A Grootenhuis1 Open Access Address 1Psycho Social Department Emma Children s Hospital Academic Medical Center AMC University of Amsterdam Amsterdam The Netherlands and 2Department of Pediatrics Emma Children s Hospital AMC University of Amsterdam The Netherlands Email Janneke Hatzmann - Heleen Maurice-Stam - Hugo SA Heymans - Martha A Grootenhuis - Corresponding author Published 28 July 2009 Received 2 December 2008 Health and Quality of Life Outcomes 2009 7 72 doi 1477-7525-7-72 Accepted 28 July 2009 This article is available from http content 7 1 72 2009 Hatzmann et al licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License http licenses by which permits unrestricted use distribution and reproduction in any medium provided the original work is properly cited. Abstract Background Parents of chronically ill children are at risk for a lower Health Related Quality of Life HRQoL . Insight in the dynamics of factors influencing parental HRQoL is necessary for development of interventions. Aim of the present study was to explore the influence of demographic and disease related factors on parental HRQoL mediated by employment income leisure time holiday and emotional support in a comprehensive model. Methods In a cross-sectional design 543 parents of chronically ill children completed questionnaires. A conceptual model of parental HRQoL was developed. Structural equation modeling was performed to explore the relations in the conceptual model and to test if the model fitted .