tailieunhanh - báo cáo hóa học: " Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales and the Cardiac Module"

Tuyển tập các báo cáo nghiên cứu về sinh học được đăng trên tạp chí hóa học quốc tế đề tài : Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ Generic Core Scales and the Cardiac Module | Berkes et al. Health and Quality of Life Outcomes 2010 8 14 http content 8 1 14 HEALTH AND QUALITY of life outcomes RESEARCH Open Access Measuring health-related quality of life in Hungarian children with heart disease psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory Generic Core Scales and the Cardiac Module Andrea Berkes1 István Pataki1 Mariann Kiss1 Csilla Kemény2 László Kardos3 James W Varni4 Gábor Mogyorósy1 Abstract Objectives The aim of the study was to investigate the psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory PedsQL Generic Core Scales and Cardiac Module. Methods The PedsQL Generic Core Scales and the PedsQL Cardiac Module was administered to 254 caregivers of children aged 2-18 years and to 195 children aged 5-18 years at a pediatric cardiology outpatient unit. A postal survey on a demographically group-matched sample of the general population with 525 caregivers of children aged 2-18 years and 373 children aged 5-18 years was conducted with the PedsQL Generic Core Scale. Responses were described compared over subgroups of subjects and were used to assess practical utility distributional coverage construct validity internal consistency and inter-reporter agreement of the instrument. Results The moderate scale-level mean percentage of missing item responses range supported the feasibility of the Generic Core Scales for general Hungarian children. Minimal to moderate ceiling effects and no floor effects were found on the Generic Core Scales. We observed stronger ceiling than floor effects in the Cardiac Module. Most of the scales showed satisfactory reliability with Cronbach s a estimates exceeding . Generally moderate to good agreement was found between self- and parent proxy-reports in the patient and in the comparison group intraclass correlation coefficient range but remarkably low agreement in the perceived .