tailieunhanh - báo cáo khoa học:" Health-related quality of life changes of children and adolescents with chronic disease after participation in therapeutic recreation camping program"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: Health-related quality of life changes of children and adolescents with chronic disease after participation in therapeutic recreation camping program | Békési et al. Health and Quality of Life Outcomes 2011 9 43 http content 9 1 43 HEALTH AND QUALITY OF LIFE OUTCOMES RESEARCH Open Access Health-related quality of life changes of children and adolescents with chronic disease after participation in therapeutic recreation camping program 1 2 -34 1 5 1 Andrea Békési Szabolcs Torok Gyongyi Kokonyei Ildikó Bokrétás Annamária Szentes Gábor Telepóczki and The European KIDSCREEN Group6 Abstract Background The principals of therapeutic recreation underpin a camping program for children and adolescents living with chronic disease. This study aimed to evaluate the campers health-related quality of life HRQoL before and after the program. Method We used the Hungarian version of Kidscreen-52 questionnaire to assess HRQoL. The study sample n 115 consisted of children and adolescents aged 10-18 Mean Age 13 34 SD 2 20 collected two months before and two months after camp with the following illnesses oncology patients n 32 diabetes n 55 and juvenile immune arthritis JIA n 28 . Repeated measures of multivariate analysis of variance MANOVA evaluated pre and post camp changes. We used the Reliable Change Index RCI to calculate all the 10 subscales of clinically significant changes. Results The Self-perception subscale showed significant positive change from pre camp to post camp with small effect size. Autonomy scores showed time related decline as well as significant time and age group interaction children under 14 years of age showed a significant moderate effect size decrease on the Autonomy subscale. 32 children showed clinically significant improvement RCI at least on one subscale. All positive changes were independent of the type of disease age gender and previous camp experience. Conclusion The therapeutic recreation camping program had a positive impact on HRQoL of children and adolescents living with cancer diabetes mellitus and JIA. The experience enhanced their self-perception in all age groups and .

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