tailieunhanh - báo cáo khoa học:" The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: cross-cultural adaptation and psychometric evaluation"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: cross-cultural adaptation and psychometric evaluation | Chen et al. Health and Quality of Life Outcomes 2011 9 16 http content 9 1 16 HEALTH AND QUALITY OF LIFE OUTCOMES RESEARCH Open Access The Chinese version of the Pediatric Quality of Life Inventory PedsQL Family Impact Module cross-cultural adaptation and psychometric evaluation Ruoqing Chen1 2 Yuantao Hao1 Lifen Feng1 Yingfen Zhang3 and Zhuoyan Huang4 Abstract Background A pediatric chronic health condition not only influences a child s life but also has impacts on parent health-related quality of life HRQOL and family functioning. To provide care and social support to these families a psychometrically well-developed instrument for measuring these impacts is of great importance. The present study is aimed to evaluate the psychometric properties of the Chinese version of the PedsQL Family Impact Module. Methods The cross-cultural adaptation of the PedsQL Family Impact Module was performed following the PedsQL Measurement Model Translation Methodology. The Chinese version of the PedsQL Family Impact Module was administered to 136 parents of children with asthma and 264 parents of children with heart disease from four Triple A hospitals. The psychometric properties such as feasibility internal consistency reliability item-subscale correlations and construct validity were evaluated. Results The percentage of missing item responses was less than for both asthma and heart disease sample groups. The Chinese version of the PedsQL Family Impact Module showed ceiling effects but had acceptable reliability Cronbach s Alpha Coefficients were higher than in all the subscales except Daily Activities in the asthma sample group . There were higher correlation coefficients between items and their hypothesized subscales than those with other subscales. The asthma sample group reported higher parent HRQOL and family functioning than the heart disease sample group. In the heart disease sample group parents of outpatients reported higher parent HRQOL and family .