tailieunhanh - báo cáo khoa học:" A tool to measure the attributes of receiving IV therapy in a home versus hospital setting: the Multiple Sclerosis Relapse Management Scale (MSRMS)"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: A tool to measure the attributes of receiving IV therapy in a home versus hospital setting: the Multiple Sclerosis Relapse Management Scale (MSRMS) | Riazi et al. Health and Quality of Life Outcomes 2011 9 80 http content 9 1 80 HEALTH AND QUALITY OF LIFE OUTCOMES RESEARCH Open Access A tool to measure the attributes of receiving IV therapy in a home versus hospital setting the Multiple Sclerosis Relapse Management Scale MSRMS 3 3 24 Afsane Riazi Bernadette Porter Jeremy Chataway Alan J Thompson and Jeremy C Hobart Abstract Background Intravenous steroids are routinely used to treat disabling relapses in multiple sclerosis MS . Theoretically the infusion could take place at home rather than in hospital. Findings from other patient populations suggest that patients may find the experiences of home relapse management more desirable. However formal comparison of these two settings from the patients point of view was prevented by the lack of a clinical scale. We report the development of a rating scale to measure patient s experiences of relapse management that allowed this question to be answered confidently. Methods Scale development had three stages. First in-depth interviews of 21 MS patients generated a conceptual model and pool of potential scale items. Second these items were administered to 160 people with relapsingremitting MS. Standard psychometric techniques were used to develop a scale. Third the psychometric properties of the scale were evaluated in a randomised controlled trial of 138 patients whose relapses were managed either at home or hospital. Results A preliminary conceptual model with eight dimensions and a pool of 154 items was generated. From this we developed the MS Relapse Management Scale MSRMS a 42-item with four subscales access to care 6 items coordination of care 11 items information 7 items interpersonal care 18 items . The MSRMS subscales satisfied most psychometric criteria but had notable floor effects. Conclusions The MSRMS is a reliable and valid measure of patients experiences of MS relapse management. The high floor effects suggest most respondents had .

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