tailieunhanh - The Juvenile Huntington’s Disease Handbook A Guide for Physicians, Neurologists and Other Professionals

As awareness of the urgency to address climate change continues to grow, governments and other stakeholders, including the United Nations System, are mobilizing to support the establishment and implementation of a new comprehensive post-2012 climate regime under the aegis of the United Nations Framework Convention on Climate Change (UNFCCC). States Parties and their partners are urged to ensure that the unique vulnerabilities and capacities of children are recognized and adequately reflected in impact assessments and policy and programmatic responses, from the local to the global level. The study reviews the implications of climate change for children and future generations, drawing on relevant experiences in different sectors and countries of promoting child rights and well-being | The Juvenile Huntington s Disease Handbook A Guide for Physicians Neurologists and Other Professionals Written and Edited by Martha Nance . With additional editing by Randi Jones . Suzanne Imbriglio . Betsy Gettig . . Published 2001 by the Huntington s Disease Society of America with funding from the American Legion Child Welfare Foundation. You may order the complete hard copy of this guidebook from HDSA Publications or by calling 1-800-345-4372 . This eBook was created May 2005 1 Table of Contents Acknowledgments Dedication Introduction Chapter 1-The Diagnosis of HD In A Child Chapter 2-After The Diagnosis Chapter 3 Specific Medical Issues Chapter 4 - Daily Life Chapter 5 - The Late Stages Chapter 6 - Financial Legal Social Service Issues Chapter 7 - Caring for the Caregivers Chapter 8 - Hope for the Future Appendices 2 This book is dedicated to Danny Davey and Dawn. Acknowledgements I thank Beryl Westphal Pat Pillis Randi Jones and the parents and family members who were willing to let me include some of their happy bittersweet and painful memories. Thanks to Ruthann Lacey and Janet Howes for their contributions to Chapter 6. Martha Nance .