tailieunhanh - Long term follow up of high risk children: Who, why and how?

Most babies are born healthy and grow and develop normally through childhood. There are, however, clearly identifiable high-risk groups of survivors, such as those born preterm or with ill-health, who are destined to have higher than expected rates of health or developmental problems, and for whom more structured and specialised follow-up programs are warranted. | Doyle et al. BMC Pediatrics 2014 14 279 http 1471-2431 14 279 BMC Pediatrics COMMENTARY Open Access Long term follow up of high risk children who why and how Lex W Doyle1 2 3 4 19 Peter J Anderson2 3 4 Malcolm Battin5 Jennifer R Bowen6 Nisha Brown1 2 7 di ldidrimid dlldmdm4 Odtkorimíd dm rdldidl 110 Cdmdritkd Id dmri lidr19 liddtdiid Ididrdrdn 1 3 4 Rridtd rìdrlrdtA 8 Catherine Callanan Catherine Campbell Samantha Chandler Jeanie Cheong Brian Darlow 14 9 10 11 19 12 Peter G Davis Tony DePaoli Noel French Andy McPhee Shusannah Morris Michael O Callaghan Ingrid Rieger13 14 Gehan Roberts2 3 15 Alicia J Spittle3 16 Dieter Wolke17 and Lianne J Woodward18 Abstract Background Most babies are born healthy and grow and develop normally through childhood. There are however clearly identifiable high-risk groups of survivors such as those born preterm or with ill-health who are destined to have higher than expected rates of health or developmental problems and for whom more structured and specialised follow-up programs are warranted. Discussion This paper presents the results of a two-day workshop held in Melbourne Australia to discuss neonatal populations in need of more structured follow-up and why in addition to how such a follow-up programme might be structured. Issues discussed included the ages of follow-up and the personnel and assessment tools that might be required. Challenges for translating results into both clinical practice and research were identified. Further issues covered included information sharing best practice for families and research gaps. Summary A substantial minority of high-risk children has long-term medical developmental and psychological adverse outcomes and will consume extensive health and education services as they grow older. Early intervention to prevent adverse outcomes and the effective integration of services once problems are identified may reduce the prevalence and severity of certain outcomes and will contribute to

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