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Personal Health Records and Personal Health Record Systems

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Common mental health disorders, such as depression, generalised anxiety disorder, panic disorder, obsessive-compulsive disorder (OCD), post-traumatic stress disorder (PTSD) and social anxiety disorder 1 , may affect up to 15% of the population at any one time. Depression and anxiety disorders can have a lifelong course of relapse and remission. There is considerable variation in the severity of common mental health disorders, but all can be associated with significant long-term disability. For example, depression is estimated to be the second greatest contributor to disability- adjusted life years throughout the developed world. It is also associated with high levels of morbidity and mortality, and. | a Report Recommendation from the National Committee on Vital and Health Statistics Personal Health Records and Personal Health Record Systems U.S. DEPARTMENT OF 1 - l V HEALTH AND HUMAN SERVICES A y National Institutes of Health T yy National Cancer Institute 5 National Center for Health Statistics . Centers for Disease Control and Prevention Personal Health Records and Personal Health Record Systems A Report and Recommendations from the National Committee on Vital and Health Statistics U.S. Department of Health and Human Services National Cancer Institute National Institutes of Health National Center for Health Statistics Centers for Disease Control and Prevention Washington D.C. February 2006 Contents Acknowledgements Executive Summary Background Personal Health Records are Evolving in Concept and Practice Recommendations 1-2 Personal Health Record Systems Value Depends on Users Sponsors and Functionality Privacy Recommendations 3-7 Security Requirements Recommendations 8-9 Interoperability Recommendations 10-14 Federal Roles in PHR Systems Internal and External Recommendations 15-16 Advancing Research and Evaluation on PHR Systems Recommendations 17-20 Next Steps for NCVHS Personal Health Records and Personal Health Record Systems